Although MS historically has been viewed as an adult-onset disease, some children and teens also live with this unpredictable illness. It is estimated that at least 8,000 - 10,000 children nationally have MS and another 10,000 - 15,000 are experiencing what may be MS symptoms. The National Multiple Sclerosis Society recognizes the great need for support, education and public awareness for this population and offers several resources.

The National MS Society recently announced the establishment of a kind network of Pediatric MS Centers of Excellence. These centers will offer comprehensive medical and psychosocial support to children and their families. For locations and further information about the first six centers established, visit our National Pediatric MS Centers page.

Young Persons with MS: A Network for Families with a Child or Teen With MS provides a variety of programs for families living with a child or teen who has been diagnosed with multiple sclerosis. Activities include teleconferences and an email group for parents, and telephone and email groups for teens. For information, call 866-KIDS-W-MS (866-543-7967) or email childhoodms@nmss.org.

MS World offers another way for children living with MS and their families to connect with peers. The website hosts online chats and message boards for children under 13, for teens, and for parents of a child with MS.

The Society also publishes Teen InsideMS, a quarterly magazine for teens living with MS and teens who have a parent with MS. The online version is available at www.NationalMSSociety.org.

The National Pediatric MS Center at Stony Brook University Hospital sponsors a four-day summer Teen Adventure Weekend for young people 11-18 years old who are living with MS. The recreational and team-building program includes activities such as kayaking, sailing, and rope climbing. The program is free, but space is limited. Email maria.milazzo@stonybrook.edu for the latest details.

If you would like to learn more about local programs and services for children and teens living with MS in the Washington, DC area, please contact Julie Humphrey Vallelunga, MSW, LGSW, at 202-296-9891 or email JVallelunga@MSandYou.org.

For additional information about childhood MS, please visit www.NationalMSSociety.org/Pediatric_and_Childhood.asp.

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